Wednesday, October 24, 2018

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Creed's Story

Creed smiling with ball

Creed, age 4, was diagnosed with Leber’s Congenital Amaurosis (LCA) on Sept. 8, 2011 at Bascom Palmer Hospital in Miami.  

LCA is a rare, hereditary disorder that leads to retinal dysfunction and visual impairment at an early age — often from birth. Of all the retinal degenerations, LCA has the earliest age of onset and can be the most severe. LCA bears the name of Dr. Theodore Leber (1840-1917), a German ophthalmologist, who first described the condition in 1869. 
Congenital means "a condition existing since birth, usually hereditary," and Amaurosis refers to any condition of blindness or marked loss of vision, especially loss of vision in which there is little or no change in the appearance of the eye itself. This is why LCA eyes usually look normal upon initial examination, however, eye function is usually poor and eyesight is rarely better than 20/400. 

The birth prevalence of LCA is two to three per 100,000 births. The condition is the most common cause of inherited blindness in childhood and constitutes more than 5 percent of all retinal dystrophies. LCA accounts for the cause of blindness in more than 20% of children attending schools for the blind.

To read an article about Creed in the Orlando Sentinel, click HERE

2nd Annual Creed's Cause 5K Race Information

Saturday, May 4, 2013

Starting Time:
8:00 a.m.

Where: Wooton Park (200 E. Ruby Street), Tavares, FL

Distance: 5K (3.1 miles) Run/Walk

Entry Fee: $25.00 (All money raised will go to research for LCA and medical expenses)

CourseCourse Map.
5K Run - Out and back course on Lake Dora Drive

While most people will jog or run the course they are participating in, this is YOUR race, and if you feel like walking that is ok. We do a sweep of the course to make sure everyone is done prior to dismantling the finish line and rolling up the timing mats.

Awards: Presented 30 minutes after final participant finishes.

Amenities: Pre/Post Race Silent Auction. Chip timing, colorful T-shirt, Accurately measured and well monitored course, Post Race Food. Registering by April 27th ensures proper t-shirt size.

Click to Register banner

Directions to
Wooton Park

View Larger Map

In Google maps, please type in either:
200 South Rockingham Ave or 200 East Ruby (either address will bring you to the same point in Tavares, FL.)

You will see O'Keefe's Irish Pub, with a parking lot across Rockingham Avenue. You can park in that parking lot.
If the lot is full, you may park any where along Main Street.

Please note: Wooton Park is very easy to spot and located on beautiful Lake Dora.